Hello Friends and Family,
I am sitting in bed, it is almost midnight and I am searching for answers and asking for prayer...
Many if not all of you know about Will and the pain he has been in. The pain started a few months ago and at times I feel like we should just move in with Wills most trusted Dr. Veresa, we are always on the phone or in her office, trying to figure this out. she has been so wonderful and going above and beyond, but we are all stumped as to why his calcium levels are so high in his urine. (even with medication) He is developing calcium crystals (small stones) almost weekly and anyone who has had Kidney stones knows the pain that goes along with this. He is growing tired of doctors offices, hospitals, specialist, blood work etc. It has been so hard to see him in such pain and Shannon and I are seeking God for wisdom and grace through this season he has us in. We are seeing two new specialist in July and I am hopeful they might have some answers. Today has been a tough one, he passed at least one stone that I saw and he seemed to feel a lot better, but has been waking up screaming tonight... holding him, heating pads and medicine seem to help for a few hours, but he is moaning and waking up shaking and crying. My heart is heavy and I am finding it hard to sleep, so I am asking you all to lift him up to the one who loves him WAY more than we ever could. I know He holds his tears (and ours) in a bottle and knows our tossing and turning. So many scriptures come to mind right now, that bring comfort, peace and a knowledge that the God of this universe holds us in his hands!
We want to walk through this with hands opens, hearts devoted to our King, and shinning as a light set on a hill, for His glory, if we don't this is all in vain!
The wonderful thing that I have seen through Wills pain, is compassion for those who are hurting, sick and even sad... He can pick them out in a crowd. I am thankful for such a tender heart that God already is molding into his likeness. He is a very special young man and I know God has a huge plan in store for him.
Thank you for praying and standing with us through these tough times.
We love you, Shannon, Heather, Will and Miles <3
3 comments:
I've been periodically checking your blog to get an update on Will. I'm sorry there is no diagnosis yet. I think about that little guy a lot. For what it is worth, my experience taking care of him has changed my life's direction. I was having the hardest time deciding on a residency. Taking care of him made it click. I am getting ready to start my senior year of medical school and will be applying to a combined Internal Medicine-Pediatrics residency program. I don't think I could have a more rewarding life than to care for someone's grandmother one minute then a boy like Will the next. Thank you for the impact your son made on my life. His hand-painted picture is hanging in my home office! That meant so much to me!
Jeremy,
We were so excited to hear from you! You are in our everyday conversation. Every appointment we go to he gets excited to see "his Jeremy" We have tried to write you a card (Will ask to often) but we didn't know you last name :( Maybe you could email us your address and Will could talk to you more! A little more update for him. We have since been been to Levine Children's Hospital to see the Nephrologist there, we hope we are on the right track but it has been such a hard road for our little fireman. He is now on Codeine for pain and 2 medications. He has started passing stones and we are praying for relief and answers SOON! Thank you again for your love and help you gave our son... I believe he is forever changed as well! Hope to hear from you soon
The Comptons
Jeremy,
I forgot to give you the email address heatherlynncompton@gmail.com
Thanks :)
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